I didn't realize this moment, how much anxiety I had from the anticipation of how I may be treated as a sickle cell patient at the ER.
Laying here in the bed at the emergency room wondering if the doctor is actually going to listen to me and understand I don't want to be here. I just want to feel better and my pain to go down to its normal level.
Here is some backstory for everyone, every sickle cell Amenia patients walk around with pain all day every day. Well, at least I do. Our pain tolerance is high, but once that threshold is broken..... The pain becomes unbearable to where we can't move. Needless to say, when the pain becomes that unbearably of course the next step is the ER.
Image now you are in excruciating pain. Now having to worry about how you will be treated at the very place built to help you through your pain.
Processing that thought isn't easy is it. I know you are trying to process how this could happen or be possible. Its unfortunately apart of my life.
Every time I unfortunately have to visit the emergency room. Different situations play through in my head. Will this doctor listen to me. Will I have to fight to get the care. Will I have to advocate for myself every step of the way because they don't wanna treat me fairly. Well I have a great experience with this doctor and able to get the treatment that I need?...
Those are the questions that run through my brain every time I sickle cell pain rages through my body cause me to come to the hospital.
One Love,
-Faustine aka Tina
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